Many Americans, and especially those who are most in need of healthcare, like those with a chronic “high-impact” condition like chronic pain, are experiencing significant distress with the current situation within our healthcare system.
Doctors are no longer taking certain kinds of insurance, including Medicare and Medical, many medications have become extremely, oft times prohibitively, expensive and health insurance has become so costly, in some cases ruinously so or simply too expensive to afford. And let’s not even start talking about attempting to understand or get a handle on your medical bills or trying to get someone within the healthcare system who even understands, let alone who can navigate through it to help you.
We are at a crossroads though and now is the time to give voice and advocate for help and change….
With the new Administration in the Whitehouse and the Affordable Healthcare Act changing, irrespective of your political sensibilities and affiliations, it is an important time for those living with chronic pain to do all we can to make our voice’s heard regarding the dire situation many of us face in respect to getting, accessing and affording healthcare.
If you are able…but if not you, than hopefully those who about you will act on your behalf. We know all to well that living in chronic pain can make many things challenging (effort and mental clarity are always “an issue”), even something as seeming simple as this.
Below is a list, with links to government organizations and to a simple sample letter that can be used when contacting your U.S. government representatives. In many cases, advocating for help and calling attention to the “lived experience” of our healthcare is a few clicks away. Simply forwarding this posting can be advocacy, the more voices the better. By contacting our government representatives, as SO few people actually do, we have the opportunity to, as they say, make a ” Big Splash”.
And here’s Cheers to that!
So whether you yourself and/or those you know, friends and family, can help, here is a short list to help with healthcare advocacy:
- To find who your U.S. Senators and/or your U.S. Representative IS simply click here.
- To contact them you can go here.
- Here you can contact the White House.
- The White House currently is very focused on changing the Affordable Healthcare Act and would like to hear from you, your story, your experience. You can do so here.
- And a sample letter from the American Medical Association that you can copy, modify and paste when communicating with the Whitehouse and/or your legislators can be found here.
Below you will find information to help you learn about the different healthcare bills that Congress is looking at and other group’s work on our nation’s healthcare problems:
- To let the Whitehouse, and those they share the information with, know that you want to “repeal and replace” the Affordable Healthcare Act click here.
- To learn about the American Healthcare Act, take a quiz to “test” your knowledge about it, and/or “sign” a petition (by clicking) in support of it go here.
- Information about Senator Paul Ryan’s “Patients’ Choice Act” can be found here.
- And finally, to read a Forbes’ article about what’s happening with our healthcare system and the Patients’ Choice Act vs the Affordable Healthcare Act click here.
Partners for Understanding Pain is a heady position paper on pain advocacy, as well information about the relationship of pain and healthcare, put together by all manner of important players in the pain field from the American Chronic Pain Institute’s “Partners for Understanding Pain”, a consortium of organizations that touch the lives of people with pain: chronic, acute, and cancer.
The Partnership is spearheaded by the American Chronic Pain Association, including such members as The American Cancer Society and the U.S. Department of Veteran’s Affairs and is “striving to create greater understanding among health care professionals, individuals and families who are struggling with pain management, the business community, legislators, and the general public that pain is a serious public health issue.”
National Pain Strategy – a summary of a study and the recommendations in 2010 by the National Institutes of Health (NIH) who contracted with the Institute of Medicine (IOM) “to increase the recognition of pain as a significant public health problem in the United States.”