Whose Who in the World of Chronic Pain: The Partner’s for Understanding Pain Member List and Links

The Partners for Understanding Pain is a consortium, “spearheaded by the American Chronic Pain Association, striving to create greater understanding among health care professionals, individuals and families who are struggling with pain management, working to bring the business community, legislators, and the general public the message that pain is a serious public health issue.”

They work hard advocating for those who live in pain and below, you will find their member list and then the links to each of these supporting organization’s home web-sites.


*Note: this is not a comprehensive list but rather simply those members whose work may, directly, be helpful to individuals living in chronic pain.

 Although their partnership is “dedicated to building the understanding and support that can help people with chronic, acute and cancer pain lead better lives”, the member’s list below contains helpful connections to those who have chronic pain for any number of other reasons.

You can visit www.understandingpain.org  for more information.


Pain Organizations

American Chronic Pain Association

American Academy of Pain Management

American Academy of Pain Medicine

American Pain Society

For Grace

Triumph Over Pain


Organizations Representing Specific Medical Conditions 

American Cancer Society

American RSD Hope Group

Reflex Sympathetic Dystrophy Syndrome (RSDS) Association of America

National Fibromyalgia Association

National Fibromyalgia Partnership

National Headache Foundation

National Vulvodynia Association

Sickle Cell Disease Association

The Neuropathy Association

The TMJ Association

Trigeminal Neuralgia Association

International Polio Network (aka International Post-Polio Network)

Interstitial Cystitis Association

Lupus Foundation of America


Medical Professional Organizations

American Nurses Association

American Academy of Nurse Practitioners

American Society for Pain Management Nurses

American Society of Perianesthesia Nurses

American Association of Rehabilitation Nurses

American Academy of Physical Medicine and Rehabilitation

American Pharmacists Association

Universities and Research Organizations

Baylor College of Medicine: Department of Physical Medicine & Rehabilitation

Center for Cancer Pain Research at Johns Hopkins

U.S. Department of Veteran Affairs Medical Center in Houston, TX

Pain & Policy Studies Group: University of Wisconsin

Pharmaceutical Research and Manufacturers (PHRMA)



Author: ChronicPainDailyReflections

I manage a web-site, Chronic Pain Daily Reflections.com, created for and in support of those living in chronic pain. The site helps with the day-to-day spiritual, mental, emotional and physical needs of those with constant pain, whatever its source.